Rare Patient Voice

Rare Patient Voice review:

Rare Patient Voice seeks patients and caregivers to offer feedback on medical products, drugs, health outcomes and customer experience. The location also recruits for medical focus groups and clinical trials.

How it really works

Prospective participants join and tell the positioning what condition ails you — or for those who’re a caregiver for an individual with a selected condition. The location will then contact you when it has a medical company in search of consumer feedback, advice or for participants in a clinical trial that matches your profile.

The location says its average pay per hour is currently $120. Nonetheless, pay varies from study to check. A 5-minute background study on Alzheimers patients pays $25; A one-hour focus group for bladder cancer patients pays $100. Joining a web based community for Crohn’s disease patients offers a $50 welcome gift and $60 for participating in discussions.

Pay

The location generally pays participants with a physical check or gift card after the research project is closed. This could mean that you just don’t receives a commission for several months after you accomplished your a part of the gig.

Participants who’ve questions on after they’ll be paid are encouraged to ask their group leader about when the project will probably be closed and paid out.

Community

Because this site brings together individuals with often serious diseases, a side profit to signing up here is you could gain a way of community with other people in your circumstances. And, because serious diseases can render patients incapable of other work, the relatively high pay for feedback here is especially well appreciated.

Recommendations

If you could have a disease, or are caring for somebody with a serious ailment, we highly recommend signing up here.  You could also want to ascertain out clinical trial opportunities with Altasciences, Fortrea or through UserLinker, which helps you to find trials based in your zip code.

What their users say (from Reddit)

RPV isn’t a scam nevertheless it’s very very difficult to match into one among their studies. I’ve been using it for near a 12 months & only was eligible to take part in 2 of them. They’ve a particular subset of patients who are suffering from the particular disease they’re studying (ie over/under a certain age, POC-only, has xyz co-morbidities) but they don’t let you know that.

Also re: payment, once I inquired about it they said that you just’ll only receives a commission once your complete study is closed, not only while you finish your part. I’m still waiting on a check from one study that’s ongoing, but I got the opposite check a number of weeks after it closed.

From the Better Business Bureau

I even have use them for years now. As I’m on disability, this really helps with making a bit of extra cash. They’ve all the time been great and reliable. Any problems.. they fix it. Any questions, they have you ever. I definitely recommend. 100 times over!!

Love this research company. Has been very helpful in making a living to help with the bills! I haven’t really had a difficulty in receiving the incentives promised to me, however the one time I did have a discrepancy within the promised incentive the service team was extremely prompt in contacting the researchers and fixing the error.

Rare Patient Voice offers many opportunities, for those who qualify, to participate in studies that provide a pleasant money reward. I’ve done one for Bipolar, which paid out $50.00, and one other one related to liver conditions, which paid out $25.00. Without delay, they send you a check within the mail when you’ve accomplished your study, Soon, they might be sending rewards electronically. In any case, the studies are easy to do and the rewards are generous.

10/02/2023